Supporting the NF2 Community through sharing Medical Information and Services

NF2 is...

Neurofibromatosis Type 2,
MERLIN - Moesin-Ezrin-Radixin-Like Protein,
BAN - Bilateral Acoustic Neurofibromatosis or Bilateral Acoustic Neuroma, MISME Syndrome - Multiple Inherited Schwannomas, Meningiomas and Ependymomas


NF2 goes by many names and can develop differently among people who have it, but most of the issues faced cannot be seen on the outside and can be overlooked for many years till a doctor suggests for an individual to go for a brain MRI to find the cause.

This is what NF2 can look like: - Learn more about NF2

Bilateral Vestibular Schwannoma

Bilateral
Vestibular Schwannoma

Schwannoma and / or Meningioma

Schwannoma and / or
Meningioma

Upper-cranial Meningioma

Upper-cranial
Meningioma


Each individual is different in the number of tumors and exact locations, but tumors are primarily found around and within the brain and spinal cord. Tumors can also be found on nerves in the body as well as masses seen on the skin surface. Approximately 98% of people with NF2 develop tumors on the hearing and balance nerves, which are the first tumors to typically require treatment. Eye issues are also a common occurrence; some are unrelated to tumor nerve damage, like Juvenile Cataracts.- Learn More


NF2 Information and Services pages are meant to be shared with doctors and others with NF2 in hopes to help more people.

A more complete PDF will be available as a free downloaded file before July 17, 2016 if at least $6,000 can be donated to the NF2 Information and Services, 501(c) (3), as a Public charity. Donation information can be done so by; GoFundMe - mailing address also included in the link.

When $20,000 is reached a book version will be freely distributed to hospitals, medical schools and on request by anyone who wishes to learn more about NF2.



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Disclaimer: Neurofibromatosis Type 2 - Information and Services, www.nf2is.org, is not run by medical experts, affiliated with any healthcare organization or any other company. No assurance can be made to the accuracy or completeness of the information provided here, the accuracy of other sites to which this site links, or of sites that link to this site. - Read More

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