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NF2 is...

Q. What Is NF2?
A. NF2 is... Neurofibromatosis Type 2,
MISME Syndrome - Multiple Inherited Schwannomas, Meningiomas and Ependymomas,
MERLIN - Moesin-Ezrin-Radixin-Like Protein,
BAN - Bilateral Acoustic Neurofibromatosis or Bilateral Acoustic Neuroma


NF2 goes by many names and can develop differently among people who have it, but most of the issues faced cannot be seen on the outside and can be overlooked for many years till a doctor suggests for an individual to go for a brain MRI to find the cause.

This is what NF2 can look like:

Bilateral Vestibular Schwannoma

Bilateral
Vestibular Schwannoma

Schwannoma and / or Meningioma

Schwannoma and / or
Meningioma

Upper-cranial Meningioma

Upper-cranial
Meningioma


Each individual is different in the number of tumors and exact locations, but tumors are primarily found around and within the brain and spinal cord. Tumors can also be found on nerves in the body as well as masses seen on the skin surface. Approximately 98% of people with NF2 develop tumors on the hearing and balance nerves, which are the first tumors to typically require treatment. Eye issues are also a common occurrence; some are unrelated to tumor nerve damage, like Juvenile Cataracts.- Learn More






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