People with NF2 tend to develop balance issues as a result of; Growth of Vestibular Schwannomas or Damage due to Vestibular Schwannomas, Spinal Tumors, Peripheral Neuropathy / Nerve Degeneration. Different things can be done to recover and compensate for balance loss.
Sometimes balance issue is from other issues. Know what is causing your balance issue, it is best to know the reason of balance issue before considering exercises to correct it. Talk to your doctor.
Inner Ear System
Gyroscope: Source Wikipedia
The most common location for tumors to grow for individuals with NF2 is in the brain along the Vestibular Nerves. The tumors are attached to the nerve itself which classifies these tumors as Schwannoma. There are two Vestibular Nerves, since there are two cranial nerves for each nerve type, one affecting the left and the other the right side of the body. The Vestibular Nerve is responsible for the function of the Vestibular System which is responsible for balance.
Vestibular Schwannoma (VS) that grow on a Vestibular Nerve will typically also damage the Cochlear Nerve as well. The Cochlear Nerve is responsible for the function of the Cochlea and therefor hearing. Cranial Nerve 8 (CN VIII), the Vestibulocochlear Nerve starts at the brainstem and splits to become the Vestibular Nerve and the Cochlear Nerve.
The three Semicircular Canals of the Vestibular System can be best understood by understanding the workings of a Gyroscope, used by ships and planes.
Since it can be a slow process from the point one nerve starts to become damaged to the point where both nerves are completely broken, individuals with NF2 tend to adjust better and faster than individuals whose nerves are damaged for other reasons. However; since vision is used to compensate for the loss of these nerves, in bad vision situations like night or if vision issues develop, balance issues will continue to be a problem.
Vestibular Rehabilitation Therapy (VRT) is very important following Vestibular Nerve damage. The dizziness, vertigo, balance problems, and other symptoms can lead to unnatural standing and walking methods. This improper compensation can be even harder to correct, lead to worsening of symptoms and often causing headache, muscle tension, and fatigue.
VRT is an exercise program used to treat people of many different ear conditions that result in damaged Vestibular Nerves. Because of the number of people with these issues, people trained to do VRT are not hard to find.
Balance ideas here should not be done while alone, and should not be done instead of having a Physical Therapist. Review ideas suggested here with your doctor.
While many people are often concerned about awkward recovery in a facility where other people might be watching and can sometimes make recovery from balance a little more difficult, physical therapists are also available who travel to patients home which some find to be an ideal environment for therapy.
Some Painkillers including; Codeine, Percocet and Tylenol #3 can make a person Lightheaded and Dizzy. Taking these things can make walking after Vestibular Nerve damage even more difficult.
Different locations of the spine, noted by location points at or between each vertebra, affect different areas of the body, controlling different; muscles, movement and organs. Therefore when Schwannoma tumors grow the location of the tumor will determine what will be damaged.
Regular exercise and movement can help prevent tumors from being symptomatic. These methods can also help aid in the healing after surgery if needed. Tumor damage can be permanent, but it depends on the extent of nerve damage and nerves are more likely to heal along the spine then in the brain.
Healing can take six months assuming the right steps are taken in the healing process, it is important to follow the instructions of your doctor and physical therapist.
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