The Central Nervous System (CNS), includes Cranial Nerves and the spinal Cord, these are the core nerves of the body, they are the; primary and main nerve branches of the body. Nerves outside of the CNS are nerves of the Peripheral Nerve System (PNS). The PNS are nerves in the; face, arms, legs, torso, but also include some nerves in the skull.
Neruropothy is nerve damage. Individuals with NF2 can develop different forms of Neruropothy for different reasons. There are two major forms of Neruropothy an individual with NF2 might face; 1) Peripheral Neruropothy, and 2) Radiculopathy. Both are issues of the PNS.
For an individual with NF2, while there may be more reasons than included here, either forms of Neruropothy of peripheral nerves could be the result of; 1) tumor growth that causes brainstem or spinal cord compression, 2) tumor growth on a nerve branch off of the spinal cord to a portion of the body, or 3) even micro-lesions (microscopic tumors not seen in MRI) on nerves.
Peripheral Nerve damage has a better chance of healing more completely than Cranial Nerve damage, even if healing might take over several months of showing signs of recovery.
NF2 Peripheral Neuropathy is Peripheral Neuropathy - Polyneuropathy (PNP), an issue which is said to develop at some point in 66% - 70% of individuals, but as all other statistics for NF2, is debatable and could be found in a higher or lower percentage of people.
As a result of PNP many who have NF2 are either instead diagnosed as having Diabetes or Multiple Sclerosis (MS). While PNP becomes a mobility issue later in life it can be a slow progression of body nerve damage that can start and result in mobility issues in a few years or decades. Misdiagnosis of NF2 PNP is less likely now as neurologists are more likely to order MRIs, as a CT Scan is less likely to show there may be brain tumors for a full complete diagnosis of NF2.
If your body is always cold or doctors have a hard time finding veins for IV injections you may have a circulation problem. Circulation issues are not uncommon among people with NF2, it is one of the signs of Peripheral Nerve Damage.
Poor circulation might be experienced as one or a combination of the following:
Everything should be done in moderation), but the following things can make circulation worse; Caffeine, Alcohol, Cigarettes, Poor Diet, Overweight and / or Lack of Exercise.
Amyotrophy, Muscle Wasting and also known as Cachexia is a wasting syndrome. Muscle Wasting is Autonomic Nervous System (Organ) Dysfunction; loss of body mass that cannot be reversed nutritionally.
While this can be found in people with different health conditions, for NF2 it arises from tumor damage to the nerves in the body that stimulates the muscle which results in loss of weight, muscle atrophy, fatigue, weakness, and significant loss of appetite.
Since it is hard to find the Schwannoma on the nerves with an MRI, an Electrophysiology Nerve Test (EMG) can be done to see nerve weakness and done again as needed to monitor change in nerve compression over time.
Minimal or reduced amounts of:
Treatment for Numbness, Severe Pain, or Weakness:
Radiculopathy is damage to peripheral nerves from the spine all the way to the nerves end, as a result of tumors within the spine causing compression damaging the complete nerve.
This could be Schwannoma on nerves, or either Meningioma or Ependymoma compressing on nerves in the Spinal Cord, at the nerves root, can damage the nerve all the way to the nerve ending. Pain or weakness would be based on exact location of the tumor.
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