Charities

There is no cure for NF2. There is yet to be a medication that will shrink all 3 NF2 tumor types (Schwannomas, Meningiomas and Ependymomas) that are found in individuals with NF2. The tumor types that have shrunk from medication have only been effective up to a certain percentage. But the medications do not even work for everyone.

Included here are charities you can donate to to help find a cure for NF2.

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NF2 BioSolutions

NF2 Research: Supporting Gene Therapy Research for Neurofibromatosis Type 2 (NF2)

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Lega per la Neurofibromatosi 2 Onlus (NF2 Italy)

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Neurofibromatosis Network

• Run for NF
• Inspire - Support Community
• Find a Doctor
• Camp New Friends
• Medical Online Webinars

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Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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CDMRP - DoD

Congressionally Directed Medical Research Programs funded through the DoD (Department of Defense).

Vision: Decrease the clinical impact of NF.

NF2 Information & Services

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• Support and Educational Events
• Print and Online: Educational Material
• Medical Center Education
• Cheer Project
• Research

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Advocure NF2

Advancing Research for NF2

• Quarterly NF2 Newsletter
• Yearly Fundraisers
• Advocacy for CDMRP Funding

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NF Organizations Worldwide

Find an NF Organization by you.

List of 14 additional NF Organizations through the world.